What We Do
Little Giants Foundation brings a face and voice to a rare genetic life-limiting disease called Schimke Immuno-osseous Dysplasia or SIOD, a condition characterized by short stature, kidney disease, and a weakened immune system. We help fund research and work with families, doctors and researchers around the world to help educate, raise awareness, and grant funds.
Emily is one of five children diagnosed in the United States and one of 50 in the world with SIOD. She is proportionate and stands 41 inches tall at 16 years of age, already surpassing the life-expectancy of this disease. She’s witty, she likes to play harmless pranks, and she loves Cheetahs. She loves animals, fairies and all things nature and the color pink and rainbows. She’ll tell you like it is and has the heart of an old soul.
Many more children may have Schimke but the journey to a diagnosis can take years and most lose their battle from the symptoms of kidney failure, infection, or stroke before they’ve been accurately diagnosed.