15603 South Highway 6
PO Box 821
Gretna, NE 68028
United States
Midlands Community Foundation
217 N. Jefferson Street
Papillion, NE 68046
United States
Little Giants Foundation brings a face and voice to a rare genetic life-limiting disease called Schimke Immuno-osseous Dysplasia or SIOD, a condition characterized by short stature, kidney disease, and a weakened immune system. We help fund research and work with families, doctors and researchers around the world to help educate, raise awareness, and grant funds. Our Inspiration Emily is one of ten children diagnosed in the United States and one of 50 in the world with SIOD. She is proportionate and stands 41 inches tall at 20 years of age, already surpassing the life-expectancy of this disease. She’s witty, she likes to play harmless pranks, and she loves Cheetahs. She loves animals, fairies and all things nature and the color pink and rainbows. She’ll tell you like it is and has the heart of an old soul. Many more children may have Schimke but the journey to a diagnosis can take years and most lose their battle from the symptoms of kidney failure, infection, or stroke before they’ve been accurately diagnosed.
- Little Giants has contributed over $100,000 to SIOD Research .
- Ten children are diagnosed in the United States and 50 children worldwide.
- Our ultimate goal is to raise one million dollars for SIOD Research for Lucile Packard Foundation at Stanford University.
