Little Giants Foundation

« Back to Nonprofit Search

Year Founded:
Local Leader / Exec. Director:
Erin Koesters
Main Address:
15603 South Highway 6
Gretna, NE 68028
Midlands Community Foundation
217 N. Jefferson Street
Papillion, NE 68046

What We Do

Little Giants Foundation brings a face and voice to a rare genetic life-limiting disease called Schimke Immuno-osseous Dysplasia or SIOD, a condition characterized by short stature, kidney disease, and a weakened immune system. We help fund research and work with families, doctors and researchers around the world to help educate, raise awareness, and grant funds.

Our Inspiration
Emily is one of five children diagnosed in the United States and one of 50 in the world with SIOD. She is proportionate and stands 41 inches tall at 16 years of age, already surpassing the life-expectancy of this disease. She’s witty, she likes to play harmless pranks, and she loves Cheetahs. She loves animals, fairies and all things nature and the color pink and rainbows. She’ll tell you like it is and has the heart of an old soul.

Many more children may have Schimke but the journey to a diagnosis can take years and most lose their battle from the symptoms of kidney failure, infection, or stroke before they’ve been accurately diagnosed.

Interesting Info

Little Giants has contributed over $60,000 to SIOD Research .
Five children are diagnosed in the United States and 50 children worldwide.
Our ultimate goal is to raise one million dollars for SIOD Research for Lucile Packard Foundation at Stanford University.

Give Shop® Wish List

Volunteer Opportunities

We do not have any volunteer needs at this time, but others do! Please search all opportunities now.

Upcoming Events

Emily's Home Town Hero Blood Drive
July 14, 2020 - 9:00am to July 18, 2020 - 12:30pm
Read more »
Night With the Omaha Stormchasers- Cancelled due to COVID-19 July 25, 2020 -
6:30pm to 10:30pm
Read more »
Little Giants 7th Annual Farm Run October 4, 2020 -
4:00pm to 6:30pm
Read more »

Photos and Videos