Little Giants Foundation

It is that time! Details are complete and time to mark the 1st Annual Little Giants Foundation Golf Tournament on your Calendar! September 28th at Ashland Golf Club! Sponsorships are open!

Your generous contribution towards The Little Giants Foundation Golf Tournament will greatly help in reaching the much needed $6 million for the research and testing to help Emily Koesters.

Gretna, Nebraska resident Emily Koesters was diagnosed with Schimke Immuno Osseous Dysplasia - a complicated medical term for one of the rarest forms of a life threatening genetic Dwarfism disease. Unlike most dwarfs you’ve seen, Emily is proportioned and stands 41 inches tall. Her condition is so rare that Emily is only one of ten others in the United States who have been diagnosed with SIOD, and less than 50 across the world. It’s believed that many more children may have SIOD but the journey to a diagnosis can take years and most lose their battle from the symptoms of kidney failure or stroke before they’ve been accurately diagnosed. Emily already has received her father’s kidney and has survived stage 3 cancer twice including 63 surgeries to date. Emily outlives the life expectancy of 9.2 years and is the only living child with SIOD in Nebraska and any of the surrounding states.

Little Giants Foundation was formed to assist with the $6 million dollars needed to complete the research and testing towards finding a cure for this disease.

You can support our cause today by pledging to sponsor our golf tournament.  

PLEASE NOTE: Registration for the tournament is separate and will be applied as you enroll depending on your partnership level.