Little Giants Foundation

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Year Founded:
2014
Local Leader / Exec. Director:
Erin Koesters
Main Address:
15603 South Highway 6
Gretna, NE 68028
Midlands Community Foundation
217 N. Jefferson Street
Papillion, NE 68046
Event:

Little Giants 7th Annual Farm Run

The Little Giants Foundations is pleased to announce registration is open for the 7th Annual Farm Run. This exciting and life saving event registration is open.

At the time of Emily’s diagnosis of SIOD, Erin and Joe couldn’t even focus on what it meant, but the years that followed have been a cycle of doctor’s appointments, hospital stays, surgeries, therapies, phone calls, medications, and paperwork, all under a cloud of SIOD’s unpredictability. Children diagnosed with SIOD often die within a year of diagnosis from renal failure or stroke; the average lifespan is 9.2 years. Often the first event that leads to a SIOD diagnosis, like renal failure, is also the last before the child dies. SIOD doesn’t just impact stature — it attacks all the systems of the body.

Schimke Immuno osseous dysplasia (SIOD) is a rare, genetic life limiting disease that causes great suffering for the children who have it, including vascular and kidney disease, a weakened immune system, and short stature caused by problems with skeletal growth. The average life expectancy for a child with the most severe form of this disease is just 11-16 years. Emily turned 16 last July.

Little Giants Foundation was formed to become a voice for those diagnosed with
rare forms of Dwarfism- in particular Schimke Immuno-osseous Dysplasia.

Event Type: 

FUNDraising

Where: 

13714 S 84th St
VIRTUAL/ swag pick up location only for Oct 3
Papillion, NE 68046
United States

When: 

October 4, 2020